Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banks.

Lorynn Teela,Michiel A J Luijten,Isolde A R Kuijlaars, Tessa C M van Gastel,Evelien S van Hoorn,Samantha C Gouw,Karin C J Fijnvandraat,Kathelijn Fischer,Marjon H Cnossen, Sasja Andeweg, Carolien van der Velden-van 't Hoff, Corinne Liem, Margreet E Jansen-Zijlstra,Marjolein Peters,Lotte Haverman

Research and practice in thrombosis and haemostasis（2023）

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摘要

The PROMIS pediatric measures are feasible to use for boys with hemophilia. With the use of the PROMIS measures in clinical care and research, a step toward worldwide standardization of PROM administration can be taken.

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关键词

feasibility studies,hemophilia,patient-reported outcome measures,pediatrics,psychometrics

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